Host: The Generation Study • Location: London, England • Dates: October 23 - 24, 2025

Get exclusive benefits, registration and discounts by becoming an ICoNS member.

Join ICoNS

2025 Key Dates & Deadlines

Public Registration is now OPEN!

Submit your ICoNS’25 Proposals:

Register for ICoNS'25

Abstracts

Workshops

ICoNS'25 Conference Registration

Member Exclusive Access

Mar 14 - Apr 14

Early Bird

Apr 14 - Jun 14

Advanced

Jun 15 - Sep 1

Late

Sep 2 - Oct 24

Abstract Submissions

Submission Window

Apr 14 - Jun 27

Final Notifications

Early Aug

Workshop Submissions

Submission Window

Mar 14 - May 14

Final Notifications

Early June

Join us at the Historic IET London: Savoy Place

This historic central London event venue on the River Thames offers cutting edge technology, improved capacity and outside space in a location that’s easily accessible by rail, tube and river.

image-of-the-kelvin-lecture-theatre (1).jpeg

conference-delegates-networking-in-the-maxwell-library.jpeg

ICoNS’25 Organizing Committee

Nicolas Encina

Executive Director, ICoNS

Harvard School of Public Health

David Bick

Co-Chair, ICoNS

Principal Clinician, Generation Study

Monique Johnson

Owner, Monx Design House

Nidhi Shah

Dir. of Operational Development, ICoNS

Geisel School of Medicine at Dartmouth

Alice Tuff-Lacey

Programme Director, Generation Study

Rose Heald

Project Manager, Special Projects, ICoNS Brigham & Women's Hospital

Sophie McLachlan

Communications Director, Genomics England

Annual Convening of All Global Thought-Leaders and Stakeholders in Newborn Sequencing

Representatives Across the Entire Healthcare Ecosystem From Over 50 Countries

Clinicians • Researchers • Policy Makers • Technology • Therapeutics • Advocacy • Diagnostics • Ethics • Hospital Systems • Laboratories

click to expand

Day 1 October 23

Morning Session

Day 1 Morning

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

Registration

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

Registration & Networking

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

Event Opening

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

Opening remarks from ICoNS Executive Director, Nicolas Encina.

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

9:05 AM – 9:10 AM09:05 – 09:109:05 AM – 9:10 AM

Welcome Address

9:05 AM – 9:10 AM09:05 – 09:109:05 AM – 9:10 AM

Welcome address from co-host Generation Study and ICoNS co-chair, David Bick

9:05 AM – 9:10 AM09:05 – 09:109:05 AM – 9:10 AM

9:12 AM – 9:20 AM09:12 – 09:209:12 AM – 9:20 AM

Global Trends

9:12 AM – 9:20 AM09:12 – 09:209:12 AM – 9:20 AM

The progress of genomic newborn sequencing around the world

9:12 AM – 9:20 AM09:12 – 09:209:12 AM – 9:20 AM

9:22 AM – 9:42 AM09:22 – 09:429:22 AM – 9:42 AM

Keynote Presentation

9:22 AM – 9:42 AM09:22 – 09:429:22 AM – 9:42 AM

Dr Sue Hill. Chief Scientific Officer, England

9:22 AM – 9:42 AM09:22 – 09:429:22 AM – 9:42 AM

9:42 AM – 10:12 AM09:42 – 10:129:42 AM – 10:12 AM

Panel: Who’s In Charge?

9:42 AM – 10:12 AM09:42 – 10:129:42 AM – 10:12 AM

Panel: Who’s In Charge?

Moderator: Alice Tuff-Lacey, The Generation Study

Panelists: Sue Hill, TBD

9:42 AM – 10:12 AM09:42 – 10:129:42 AM – 10:12 AM

10:14 AM – 10:29 AM10:14 – 10:2910:14 AM – 10:29 AM

Session Q&A

10:14 AM – 10:29 AM10:14 – 10:2910:14 AM – 10:29 AM

Session Q&A

10:14 AM – 10:29 AM10:14 – 10:2910:14 AM – 10:29 AM

10:29 AM – 11:00 PM10:29 – 23:0010:29 AM – 11:00 PM

Morning Break

10:29 AM – 11:00 PM10:29 – 23:0010:29 AM – 11:00 PM

Morning Break

10:29 AM – 11:00 PM10:29 – 23:0010:29 AM – 11:00 PM

11:01 AM – 11:11 AM11:01 – 11:1111:01 AM – 11:11 AM

Speaker

11:01 AM – 11:11 AM11:01 – 11:1111:01 AM – 11:11 AM

Speaker: TBD

11:01 AM – 11:11 AM11:01 – 11:1111:01 AM – 11:11 AM

11:13 AM – 11:23 AM11:13 – 11:2311:13 AM – 11:23 AM

Abstract Presentation

11:13 AM – 11:23 AM11:13 – 11:2311:13 AM – 11:23 AM

Select Abstract Presentation (TBD)

11:13 AM – 11:23 AM11:13 – 11:2311:13 AM – 11:23 AM

11:25 AM – 11:35 AM11:25 – 11:3511:25 AM – 11:35 AM

Abstract Presentation

11:25 AM – 11:35 AM11:25 – 11:3511:25 AM – 11:35 AM

Select Abstract Presentation (TBD)

11:25 AM – 11:35 AM11:25 – 11:3511:25 AM – 11:35 AM

11:37 AM – 12:07 PM11:37 – 12:0711:37 AM – 12:07 PM

Lightning Poster Talks

11:37 AM – 12:07 PM11:37 – 12:0711:37 AM – 12:07 PM

Lightning Poster Talks

11:37 AM – 12:07 PM11:37 – 12:0711:37 AM – 12:07 PM

12:09 PM – 12:24 PM12:09 – 12:2412:09 PM – 12:24 PM

Session Q&A

12:09 PM – 12:24 PM12:09 – 12:2412:09 PM – 12:24 PM

Lightning Poster Talks

12:09 PM – 12:24 PM12:09 – 12:2412:09 PM – 12:24 PM

12:25 PM – 1:30 PM12:25 – 13:3012:25 PM – 1:30 PM

Lunch Break

12:25 PM – 1:30 PM12:25 – 13:3012:25 PM – 1:30 PM

Lunch Break

12:25 PM – 1:30 PM12:25 – 13:3012:25 PM – 1:30 PM

12:45 PM – 1:00 PM12:45 – 13:0012:45 PM – 1:00 PM

Lunchtime Seminar 1

12:45 PM – 1:00 PM12:45 – 13:0012:45 PM – 1:00 PM

Seminar: TBD

Presenter: TBD

Time: 12:45 PM - 1:00 PM

(in-person only)

12:45 PM – 1:00 PM12:45 – 13:0012:45 PM – 1:00 PM

1:00 PM – 1:15 PM13:00 – 13:151:00 PM – 1:15 PM

Lunchtime Seminar 2

1:00 PM – 1:15 PM13:00 – 13:151:00 PM – 1:15 PM

Seminar: TBD

Presenter: TBD

Time: 1:00 PM - 1:15 PM

(in-person only)

1:00 PM – 1:15 PM13:00 – 13:151:00 PM – 1:15 PM

Afternoon Session

Featured

1:30 PM – 1:48 PM13:30 – 13:481:30 PM – 1:48 PM

Speaker

1:30 PM – 1:48 PM13:30 – 13:481:30 PM – 1:48 PM

Speaker: TBD

1:30 PM – 1:48 PM13:30 – 13:481:30 PM – 1:48 PM

1:30 PM – 3:00 PM13:30 – 15:001:30 PM – 3:00 PM

Workshop

1:30 PM – 3:00 PM13:30 – 15:001:30 PM – 3:00 PM

Topic: TBD

Format: TBD

1:30 PM – 3:00 PM13:30 – 15:001:30 PM – 3:00 PM

1:50 PM – 2:00 PM13:50 – 14:001:50 PM – 2:00 PM

Abstract Presentation

1:50 PM – 2:00 PM13:50 – 14:001:50 PM – 2:00 PM

Select Abstract Presentation (TBD)

1:50 PM – 2:00 PM13:50 – 14:001:50 PM – 2:00 PM

2:02 PM – 2:12 PM14:02 – 14:122:02 PM – 2:12 PM

Abstract Presentation

2:02 PM – 2:12 PM14:02 – 14:122:02 PM – 2:12 PM

Select Abstract Presentation (TBD)

2:02 PM – 2:12 PM14:02 – 14:122:02 PM – 2:12 PM

2:14 PM – 2:24 PM14:14 – 14:242:14 PM – 2:24 PM

Abstract Presentation

2:14 PM – 2:24 PM14:14 – 14:242:14 PM – 2:24 PM

Select Abstract Presentation (TBD)

2:14 PM – 2:24 PM14:14 – 14:242:14 PM – 2:24 PM

2:26 PM – 2:36 PM14:26 – 14:362:26 PM – 2:36 PM

Abstract Presentation

2:26 PM – 2:36 PM14:26 – 14:362:26 PM – 2:36 PM

Select Abstract Presentation (TBD)

2:26 PM – 2:36 PM14:26 – 14:362:26 PM – 2:36 PM

2:38 PM – 2:48 PM14:38 – 14:482:38 PM – 2:48 PM

Abstract Presentation

2:38 PM – 2:48 PM14:38 – 14:482:38 PM – 2:48 PM

Select Abstract Presentation (TBD)

2:38 PM – 2:48 PM14:38 – 14:482:38 PM – 2:48 PM

2:50 PM – 3:05 PM14:50 – 15:052:50 PM – 3:05 PM

Session Q&A

2:50 PM – 3:05 PM14:50 – 15:052:50 PM – 3:05 PM

Session Q&A

2:50 PM – 3:05 PM14:50 – 15:052:50 PM – 3:05 PM

3:07 PM – 3:37 PM15:07 – 15:373:07 PM – 3:37 PM

Afternoon Break

3:07 PM – 3:37 PM15:07 – 15:373:07 PM – 3:37 PM

Session Q&A

3:07 PM – 3:37 PM15:07 – 15:373:07 PM – 3:37 PM

3:39 PM – 3:49 PM15:39 – 15:493:39 PM – 3:49 PM

Speaker

3:39 PM – 3:49 PM15:39 – 15:493:39 PM – 3:49 PM

Speaker: TBD

3:39 PM – 3:49 PM15:39 – 15:493:39 PM – 3:49 PM

3:51 PM – 4:01 PM15:51 – 16:013:51 PM – 4:01 PM

Abstract Presentation

3:51 PM – 4:01 PM15:51 – 16:013:51 PM – 4:01 PM

Select Abstract Presentation (TBD)

3:51 PM – 4:01 PM15:51 – 16:013:51 PM – 4:01 PM

4:03 PM – 4:13 PM16:03 – 16:134:03 PM – 4:13 PM

Abstract Presentation

4:03 PM – 4:13 PM16:03 – 16:134:03 PM – 4:13 PM

Select Abstract Presentation (TBD)

4:03 PM – 4:13 PM16:03 – 16:134:03 PM – 4:13 PM

4:15 PM – 4:25 PM16:15 – 16:254:15 PM – 4:25 PM

Abstract Presentation

4:15 PM – 4:25 PM16:15 – 16:254:15 PM – 4:25 PM

Select Abstract Presentation (TBD)

4:15 PM – 4:25 PM16:15 – 16:254:15 PM – 4:25 PM

4:27 PM – 4:37 PM16:27 – 16:374:27 PM – 4:37 PM

Abstract Presentation

4:27 PM – 4:37 PM16:27 – 16:374:27 PM – 4:37 PM

Select Abstract Presentation (TBD)

4:27 PM – 4:37 PM16:27 – 16:374:27 PM – 4:37 PM

4:39 PM – 4:54 PM16:39 – 16:544:39 PM – 4:54 PM

Session Q&A

4:39 PM – 4:54 PM16:39 – 16:544:39 PM – 4:54 PM

Session Q&A

4:39 PM – 4:54 PM16:39 – 16:544:39 PM – 4:54 PM

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

Closing

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

Select Abstract Presentation (TBD)

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

click to expand

Poster Sessions

Posters

5:00 PM – 6:30 PM17:00 – 18:305:00 PM – 6:30 PM

Poster #1-X

5:00 PM – 6:30 PM17:00 – 18:305:00 PM – 6:30 PM

Poster Session & Cocktail Reception

5:00 PM – 6:30 PM17:00 – 18:305:00 PM – 6:30 PM

click to expand

Day 2 October 24

Morning Session

Day 2 Morning

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

Registration

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

Registration & Networking

7:30 AM – 9:00 AM07:30 – 09:007:30 AM – 9:00 AM

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

Opening Remarks

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

Registration & Networking

9:00 AM – 9:05 AM09:00 – 09:059:00 AM – 9:05 AM

9:07 AM – 9:28 AM09:07 – 09:289:07 AM – 9:28 AM

Patient-Centered Care

9:07 AM – 9:28 AM09:07 – 09:289:07 AM – 9:28 AM

Presentation 1: Hopkins Van Mil

Presentation 2: Genetic Alliance

Presentation 3: The Generation Study

9:07 AM – 9:28 AM09:07 – 09:289:07 AM – 9:28 AM

9:30 AM – 9:40 AM09:30 – 09:409:30 AM – 9:40 AM

Abstract Presentation

9:30 AM – 9:40 AM09:30 – 09:409:30 AM – 9:40 AM

Select Abstract Presentation (TBD)

9:30 AM – 9:40 AM09:30 – 09:409:30 AM – 9:40 AM

9:42 AM – 9:52 AM09:42 – 09:529:42 AM – 9:52 AM

Abstract Presentation

9:42 AM – 9:52 AM09:42 – 09:529:42 AM – 9:52 AM

Select Abstract Presentation (TBD)

9:42 AM – 9:52 AM09:42 – 09:529:42 AM – 9:52 AM

9:54 AM – 10:14 AM09:54 – 10:149:54 AM – 10:14 AM

Keynote Presentation

9:54 AM – 10:14 AM09:54 – 10:149:54 AM – 10:14 AM

Title: Tackling the VUS Problem

Speaker: Heidi Rehm

Investigator, Full Prof (M), Center for Genomic Medicine, Mass General Research Institute
Chief Genomics Officer, Department of Medicine, Massachusetts General Hospital
Institute Member, Broad Institute
Co-Director, Medical and Population Genetics, Broad Institute
Chief Medical Officer and Clinical Laboratory Director, Broad Clinical Laboratories, Broad Institute
Professor of Pathology, Harvard Medical School
Associate Laboratory Scientist, Pathology, Massachusetts General Hospital

9:54 AM – 10:14 AM09:54 – 10:149:54 AM – 10:14 AM

10:16 AM – 10:31 AM10:16 – 10:3110:16 AM – 10:31 AM

Session Q&A

10:16 AM – 10:31 AM10:16 – 10:3110:16 AM – 10:31 AM

Session Q&A

10:16 AM – 10:31 AM10:16 – 10:3110:16 AM – 10:31 AM

10:33 AM – 10:33 AM10:33 – 10:3310:33 AM – 10:33 AM

Workshop

10:33 AM – 10:33 AM10:33 – 10:3310:33 AM – 10:33 AM

Workshop: TBD

10:33 AM – 10:33 AM10:33 – 10:3310:33 AM – 10:33 AM

10:33 AM – 11:03 AM10:33 – 11:0310:33 AM – 11:03 AM

Morning Break

10:33 AM – 11:03 AM10:33 – 11:0310:33 AM – 11:03 AM

Morning Break

10:33 AM – 11:03 AM10:33 – 11:0310:33 AM – 11:03 AM

11:03 AM – 11:13 PM11:03 – 23:1311:03 AM – 11:13 PM

Speaker

11:03 AM – 11:13 PM11:03 – 23:1311:03 AM – 11:13 PM

Speaker: TBD

11:03 AM – 11:13 PM11:03 – 23:1311:03 AM – 11:13 PM

11:15 AM – 11:45 PM11:15 – 23:4511:15 AM – 11:45 PM

Panel

11:15 AM – 11:45 PM11:15 – 23:4511:15 AM – 11:45 PM

Subject: TBD

11:15 AM – 11:45 PM11:15 – 23:4511:15 AM – 11:45 PM

11:47 AM – 12:02 PM11:47 – 12:0211:47 AM – 12:02 PM

Session Q&A

11:47 AM – 12:02 PM11:47 – 12:0211:47 AM – 12:02 PM

Session Q&A

11:47 AM – 12:02 PM11:47 – 12:0211:47 AM – 12:02 PM

12:02 PM – 1:32 PM12:02 – 13:3212:02 PM – 1:32 PM

Lunch

12:02 PM – 1:32 PM12:02 – 13:3212:02 PM – 1:32 PM

Lunch & Seminars

12:02 PM – 1:32 PM12:02 – 13:3212:02 PM – 1:32 PM

12:15 PM – 12:30 PM12:15 – 12:3012:15 PM – 12:30 PM

Lunchtime Seminar

12:15 PM – 12:30 PM12:15 – 12:3012:15 PM – 12:30 PM

Lunchtime Seminar

12:15 PM – 12:30 PM12:15 – 12:3012:15 PM – 12:30 PM

12:30 PM – 12:45 PM12:30 – 12:4512:30 PM – 12:45 PM

Lunchtime Seminar

12:30 PM – 12:45 PM12:30 – 12:4512:30 PM – 12:45 PM

Lunchtime Seminar

12:30 PM – 12:45 PM12:30 – 12:4512:30 PM – 12:45 PM

Afternoon Session

Featured

1:34 PM – 1:49 PM13:34 – 13:491:34 PM – 1:49 PM

Speaker

1:34 PM – 1:49 PM13:34 – 13:491:34 PM – 1:49 PM

TBD

1:34 PM – 1:49 PM13:34 – 13:491:34 PM – 1:49 PM

1:51 PM – 2:06 PM13:51 – 14:061:51 PM – 2:06 PM

Speaker

1:51 PM – 2:06 PM13:51 – 14:061:51 PM – 2:06 PM

Speaker: TBD

1:51 PM – 2:06 PM13:51 – 14:061:51 PM – 2:06 PM

2:08 PM – 2:18 PM14:08 – 14:182:08 PM – 2:18 PM

Abstract Presentation

2:08 PM – 2:18 PM14:08 – 14:182:08 PM – 2:18 PM

Select Abstract Presentation (TBD)

2:08 PM – 2:18 PM14:08 – 14:182:08 PM – 2:18 PM

2:20 PM – 2:30 PM14:20 – 14:302:20 PM – 2:30 PM

Abstract Presentation

2:20 PM – 2:30 PM14:20 – 14:302:20 PM – 2:30 PM

Select Abstract Presentation (TBD)

2:20 PM – 2:30 PM14:20 – 14:302:20 PM – 2:30 PM

2:32 PM – 2:42 PM14:32 – 14:422:32 PM – 2:42 PM

Abstract Presentation

2:32 PM – 2:42 PM14:32 – 14:422:32 PM – 2:42 PM

Select Abstract Presentation (TBD)

2:32 PM – 2:42 PM14:32 – 14:422:32 PM – 2:42 PM

2:44 PM – 2:54 PM14:44 – 14:542:44 PM – 2:54 PM

Abstract Presentation

2:44 PM – 2:54 PM14:44 – 14:542:44 PM – 2:54 PM

Select Abstract Presentation (TBD)

2:44 PM – 2:54 PM14:44 – 14:542:44 PM – 2:54 PM

2:56 PM – 3:11 PM14:56 – 15:112:56 PM – 3:11 PM

Session Q&A

2:56 PM – 3:11 PM14:56 – 15:112:56 PM – 3:11 PM

Session Q&A

2:56 PM – 3:11 PM14:56 – 15:112:56 PM – 3:11 PM

3:11 PM – 3:41 PM15:11 – 15:413:11 PM – 3:41 PM

Afternoon Break

3:11 PM – 3:41 PM15:11 – 15:413:11 PM – 3:41 PM

Afternoon Break

3:11 PM – 3:41 PM15:11 – 15:413:11 PM – 3:41 PM

3:43 PM – 3:58 PM15:43 – 15:583:43 PM – 3:58 PM

Speaker

3:43 PM – 3:58 PM15:43 – 15:583:43 PM – 3:58 PM

Speaker: TBD

3:43 PM – 3:58 PM15:43 – 15:583:43 PM – 3:58 PM

4:00 PM – 4:10 PM16:00 – 16:104:00 PM – 4:10 PM

Abstract Presentation

4:00 PM – 4:10 PM16:00 – 16:104:00 PM – 4:10 PM

Select Abstract Presentation (TBD)

4:00 PM – 4:10 PM16:00 – 16:104:00 PM – 4:10 PM

4:12 PM – 4:22 PM16:12 – 16:224:12 PM – 4:22 PM

Abstract Presentation

4:12 PM – 4:22 PM16:12 – 16:224:12 PM – 4:22 PM

Select Abstract Presentation (TBD)

4:12 PM – 4:22 PM16:12 – 16:224:12 PM – 4:22 PM

4:24 PM – 4:54 PM16:24 – 16:544:24 PM – 4:54 PM

Fireside Chat

4:24 PM – 4:54 PM16:24 – 16:544:24 PM – 4:54 PM

Fireside Chat: TBD

4:24 PM – 4:54 PM16:24 – 16:544:24 PM – 4:54 PM

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

Closing

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

Final Words

4:55 PM – 5:00 PM16:55 – 17:004:55 PM – 5:00 PM

Travel & Accommodations

- Page8 Hotel
  - Must use booking code: ICONS25
  - Early Bird Offer, October 22-25, 2025. (Reservation must be made by June 15, 2025)
- Club Quarters Trafalgar Square
  - October 22-25, 2025. (Reservation must be made by September 21, 2025)
- Club Quarters Covent Garden
  - October 22-25, 2025. (Reservation must be made by September 21, 2025)
- Radisson Blu
  - Must use booking code: ICONS221025
  - October 22-25 (Reservations must be made by August 25, 2025)

Special note to exhibitors, speakers and delegates.
ICoNS is NOT affiliated or related to any travel agencies or destination management companies and will never solicit you for flights or accommodations.
It is important to be aware that you may be contacted by phone, fax, or email by third party companies that act as travel agencies, wholesalers or destination management companies to solicit you with aggressive or deceptive tactics for room reservations. Room poachers and pirates may also misrepresent themselves as the official conference housing bureau and may illegally use the conference name or logo, however these companies are neither related nor affiliated with ICoNS and its meetings in any way.

Question(s)?

Contact Us

Name

First Name

Last Name

Email

Subject

Reason for contact

Message

Host: The Generation Study • Location: London, England • Dates: October 23 - 24, 2025

2025 Key Dates & Deadlines

Join us at the Historic IET London: Savoy Place

ICoNS’25 Organizing Committee

Nicolas Encina

David Bick

Monique Johnson

Nidhi Shah

Alice Tuff-Lacey

Rose Heald

Sophie McLachlan

Annual Convening of All Global Thought-Leaders and Stakeholders in Newborn Sequencing

Day 1 October 23

Morning Session

Afternoon Session

Poster Sessions

Day 2 October 24

Morning Session

Afternoon Session

Travel & Accommodations

Accommodations

Important Scam Alert

Contact Us