
Host: The Generation Study • Location: London, England • Dates: October 23 - 24, 2025
2025 Key Dates & Deadlines
Join us at the Historic IET London: Savoy Place
This historic central London event venue on the River Thames offers cutting edge technology, improved capacity and outside space in a location that’s easily accessible by rail, tube and river.









ICoNS’25 Organizing Committee
Nicolas Encina
Executive Director, ICoNS
Harvard School of Public Health
Nidhi Shah
Dir. of Operational Development, ICoNS
Geisel School of Medicine at Dartmouth
Rose Heald
Project Manager, Special Projects, ICoNS Brigham & Women's Hospital
David Bick
Co-Chair, ICoNS
Principal Clinician, Generation Study
Alice Tuff-Lacey
Programme Director, Generation Study
Owner, Monx Design House
Monique Johnson


ICoNS ANNUAL MEETING
Annual Convening of Global Thought-Leaders and Stakeholders in Newborn Sequencing
Representatives Across the Entire Healthcare Ecosystem From Over 50 Countries
Clinicians • Researchers • Policy Makers • Technology • Therapeutics • Advocacy • Diagnostics • Ethics • Hospital Systems • Laboratories
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Day 1 October 23
Morning Session
Panel: UK Newborn Genomic Screening
Moderator: Alice Tuff-Lacey, The Generation Study
Panelists: Sue Hill, Kirsty Hoyle, Amanda Pichini
Moderator: Nidhi Shah
Panelists: Pranesh Chakraborty (Canada), Aimé Lumaka (DR Congo), Laurence Faivre (France), Fowzan Alkuraya (Saudi Arabia), Jeffrey Himmel (Ecuador)
Afternoon Session
Learning from the Field: Concrete Lessons from Pilot Projects on Genomic Newborn Screening
(Moderator) Laurence Faivre, CHU Dijon France
Robert Green, Harvard Medical School - Lessons learned from BabySeq
Wendy Chung, Boston Children’s Hospital - Lessons learned from GUARDIAN
David Bick, Genomics England - Lessons learned from Generation Study
Sebastian Lunke, The Royal Children’s Hospital - Lessons learned from BabyScreen
Laurent Servais, CHU Liège - Lessons learned from BabyDetect
Workshop Sessions
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Day 1, Plenary Session
Learning from the Field: Concrete Lessons from Pilot Projects on Genomic Newborn Screening
(Moderator) Laurence Faivre, CHU Dijon France
Robert Green, Harvard Medical School - Lessons learned from BabySeq
Wendy Chung, Boston Children’s Hospital - Lessons learned from GUARDIAN
David Bick, Genomics England - Lessons learned from Generation Study
Sebastian Lunke, The Royal Children’s Hospital - Lessons learned from BabyScreen
Laurent Servais, CHU Liège - Lessons learned from BabyDetect
Day 2, Morning Session
Valuing genomic newborn sequencing: an educational session for non health economists
Presenters:
(Moderator) James Buchanan, Queen Mary University of London, - Challenges when estimating value in the context of genomic newborn sequencing
Martin Vu, Queen Mary University of London - An introduction to economic evaluation for non health economists
Miranda Bailey, Rocket Pharmaceuticals - Current evidence on the value of genomics
Hadley Stevens Smith, Harvard University - Determining value when an intervention impacts multiple conditions simultaneously: An example from the BabySeq Project
Aditi Satija, Genomics England - Determining value when an intervention impacts multiple conditions simultaneously: An example from the Generation Study
Day 2, Afternoon Session
Public health impacts of genomic newborn sequencing
Presenters:
(Moderator) Emma Baple, University of Exeter
Dr. Anne Mackie, UK National Screening Committee - Public health considerations in population screening – a UK perspective
Prof. Martina Cornel, Amsterdam University Medical Center, Netherlands Health Council (specifically Population Screening and Council Group committees) - Public health considerations in population screening – a European perspective
Dr. Amicia Phillips, University of Exeter - Defining actionability within an expanded newborn genome screening context
Dr. David Bick, Genomics England - Readying health systems to handle expanded newborn genome screening
Dr. Aimé Lumaka, University of Kinshasa - Public health considerations in population screening - a African perspective
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Poster Sessions
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Day 2 October 24
Morning Session
Title: Tackling the VUS Problem
Speaker: Heidi Rehm
Investigator, Full Prof (M), Center for Genomic Medicine, Mass General Research Institute
Chief Genomics Officer, Department of Medicine, Massachusetts General Hospital
Institute Member, Broad Institute
Co-Director, Medical and Population Genetics, Broad Institute
Chief Medical Officer and Clinical Laboratory Director, Broad Clinical Laboratories, Broad Institute
Professor of Pathology, Harvard Medical School
Associate Laboratory Scientist, Pathology, Massachusetts General Hospital
Moderator: Robert Green
Panelists: Heidi Rehm, Kate Tatton-Brown, Mei Baker, Madhuri Hegde, Jason Pinner
Afternoon Session
What does it take to be trustworthy with genomic data? Insights from an ethics perspective
Natalie Banner, Director of Ethics, Genomics England
Informing the future: 5 pieces of practical advice for involving people in genomics and health
Suzanna Kinsella, Hopkins Van Mil
Travel & Accommodations
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Must use booking code: ICONS25
October 22-25, 2025. (Reservation must be made by Aug 31, 2025)
Club Quarters Trafalgar Square
October 22-25, 2025. (Reservation must be made by September 21, 2025)
October 22-25, 2025. (Reservation must be made by September 21, 2025)
Must use booking code: ICONS221025
October 22-25 (Reservations must be made by August 25, 2025)
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Special note to exhibitors, speakers and delegates.
ICoNS is NOT affiliated or related to any travel agencies or destination management companies and will never solicit you for flights or accommodations.
It is important to be aware that you may be contacted by phone, fax, or email by third party companies that act as travel agencies, wholesalers or destination management companies to solicit you with aggressive or deceptive tactics for room reservations. Room poachers and pirates may also misrepresent themselves as the official conference housing bureau and may illegally use the conference name or logo, however these companies are neither related nor affiliated with ICoNS and its meetings in any way.