Oct
23

Plenary Session Workshop #3

Day 1, Plenary Session

Learning from the Field: Concrete Lessons from Pilot Projects on Genomic Newborn Screening

  1. (Moderator) Laurence Faivre, CHU Dijon France

  2. Robert Green, Harvard Medical School - Lessons learned from BabySeq

  3. Wendy Chung, Boston Children’s Hospital - Lessons learned from GUARDIAN

  4. David Bick, Genomics England - Lessons learned from Generation Study

  5. Sebastian Lunke, The Royal Children’s Hospital - Lessons learned from BabyScreen

  6. Laurent Servais, CHU Liège - Lessons learned from BabyDetect

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Oct
24

Workshop #4

Day 2, Morning Session

Valuing genomic newborn sequencing: an educational session for non health economists

Presenters:

  1. (Moderator) James Buchanan, Queen Mary University of London, - Challenges when estimating value in the context of genomic newborn sequencing

  2. Martin Vu, Queen Mary University of London - An introduction to economic evaluation for non health economists

  3. Miranda Bailey, Rocket Pharmaceuticals - Current evidence on the value of genomics

  4. Hadley Stevens Smith, Harvard University - Determining value when an intervention impacts multiple conditions simultaneously: An example from the BabySeq Project

  5. Aditi Satija, Genomics England - Determining value when an intervention impacts multiple conditions simultaneously: An example from the Generation Study

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Oct
24

Workshop #5

Day 2, Afternoon Session

Public health impacts of genomic newborn sequencing

Presenters:

  1. (Moderator) Emma Baple, University of Exeter

  2. Dr. Anne Mackie, UK National Screening Committee - Public health considerations in population screening – a UK perspective

  3. Prof. Martina Cornel, Amsterdam University Medical Center, Netherlands Health Council (specifically Population Screening and Council Group committees) - Public health considerations in population screening – a European perspective

  4. Dr. Amicia Phillips, University of Exeter - Defining actionability within an expanded newborn genome screening context

  5. Dr. David Bick, Genomics England - Readying health systems to handle expanded newborn genome screening

  6. Dr. Aimé Lumaka, University of Kinshasa - Public health considerations in population screening - a African perspective

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