Plenary Session Workshop #3
Day 1, Plenary Session
Learning from the Field: Concrete Lessons from Pilot Projects on Genomic Newborn Screening
(Moderator) Laurence Faivre, CHU Dijon France
Robert Green, Harvard Medical School - Lessons learned from BabySeq
Wendy Chung, Boston Children’s Hospital - Lessons learned from GUARDIAN
David Bick, Genomics England - Lessons learned from Generation Study
Sebastian Lunke, The Royal Children’s Hospital - Lessons learned from BabyScreen
Laurent Servais, CHU Liège - Lessons learned from BabyDetect
Workshop #4
Day 2, Morning Session
Valuing genomic newborn sequencing: an educational session for non health economists
Presenters:
(Moderator) James Buchanan, Queen Mary University of London, - Challenges when estimating value in the context of genomic newborn sequencing
Martin Vu, Queen Mary University of London - An introduction to economic evaluation for non health economists
Miranda Bailey, Rocket Pharmaceuticals - Current evidence on the value of genomics
Hadley Stevens Smith, Harvard University - Determining value when an intervention impacts multiple conditions simultaneously: An example from the BabySeq Project
Aditi Satija, Genomics England - Determining value when an intervention impacts multiple conditions simultaneously: An example from the Generation Study
Workshop #5
Day 2, Afternoon Session
Public health impacts of genomic newborn sequencing
Presenters:
(Moderator) Emma Baple, University of Exeter
Dr. Anne Mackie, UK National Screening Committee - Public health considerations in population screening – a UK perspective
Prof. Martina Cornel, Amsterdam University Medical Center, Netherlands Health Council (specifically Population Screening and Council Group committees) - Public health considerations in population screening – a European perspective
Dr. Amicia Phillips, University of Exeter - Defining actionability within an expanded newborn genome screening context
Dr. David Bick, Genomics England - Readying health systems to handle expanded newborn genome screening
Dr. Aimé Lumaka, University of Kinshasa - Public health considerations in population screening - a African perspective